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Epilepsy Foundation Update

The board of the Epilepsy Foundation of New Zealand Incorporated are pleased to announce a change in what we do to support people with Epilepsy in New Zealand.

The Epilepsy Foundation of New Zealand Inc (EFNZ) became a registered charitable organisation in September 1987.  The purpose of the organisation was to raise funds to support the one in fifty New Zealanders living with epilepsy.  Our focus moved to meet specific needs that were identified. And over the last few years we have achieved the following:

Outcomes Financial Year Ended
31/03/2019 31/03/2018 31/03/2017
Creative Therapy Sessions 29 36
KindyRock Music Sessions (At Carlson & Oranga Schools) 56 80
Talk Talk Counselling Hours  – Individual & Group 58.5 152 262
Talk Talk Retreats Held 5
Brain Train Events 3
Epilepsy Awareness Events –  (Stand at Brain Day) 1
Raised Awareness through # of Facebook followers 1700 1600 1524
Grants to Organisations: Projects $5,000 $20,000
Grants to Organisations: Operating Expenses $10,000
Grants to Quality of Life $1,050
Consumer & Health & Social Service Inquiries 110 62

Over the last 12 months the board has reviewed the current working model under which EFNZ presently operates. It also looked at EFNZ’s financial sustainability as a stand-alone organisation that directly contributes to the active conduct of a charitable purpose.

As a result, and in accordance with its constitution, members at our 2019 Annual General Meeting determined that EFNZ’s goals would be better achieved if it becomes a grant-making organisation rather than maintaining the higher cost model of delivering services.

To achieve this EFNZ will be winding up and any proceeds will be transitioned to a fund with equivalent name and purposes under the umbrella of the Perpetual Guardian Foundation CC51167. This is in order to leverage the sustainable infrastructure of a Professional Trustee Company that will exist in perpetuity.

We will provide updates to key stakeholders as we work through this process.


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Epilepsy Foundation are proud to be a supporter of EpiNet. To find out more about the Epinet Study Group and the work they are doing check out the information on their website.

We are changing our focus.

Keep an eye on our website and Facebook page over the next few months and we will keep you informed.