Your Stories


Hannah’s Story

At the age of 12 years old I started getting blackouts / fainting, conscious convulsions & petit mal seizures, a year later I was diagnosed with Juvenile Myoclonic Epilepsy of JANZ. At this time I was seizuring multiple times a …

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Rachels Story

Our experience with epilepsy has been somewhat frightening. I am a registered nurse (graduated in 1996) and have worked in the field of disability and medically fragile children and families since then. This has included many, many children with severe …

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Yvonnes Story

It started as an ordinary evening at home with the family, with everyone sitting down to watch television, but it was the night that changed Yvonne’s life forever. Then aged 14, Yvonne recalls suddenly finding it difficult to breath, swallow, …

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