Welcome to the modernized Epilepsy Foundation newsletter. A quarterly publication, SEIZE LIFE will report on past happenings and informing you of up and coming programmes, events and activities. The objective of the Foundation is to support those who have, or are, living with epilepsy. This includes parents, siblings, extended families and other support agencies such as schools and community clubs. Communication and interaction between the Foundation and all of you is essential.
The Epilepsy Foundation offers three avenues of communication;
- Our Newsletter Seize Life
The Foundation Facebook page, we hope, will become a totally interactive venue where all of you can post ideas, offer points, view and place photographs and follow our events and activities calendar.
2013 is the 25th anniversary of the Epilepsy Foundation of NZ Inc. The Foundation was the brainchild of visionary, Ray Kerr. Ray has been involved in advocating, raising funds and awareness, for all those living with epilepsy, NZ’s most common neurological condition. In 1992 Ray was awarded an MBE for 50 years of service to epilepsy. Ray, and wife June, supported their much loved daughter Hillary, through her trials and tribulations of living with disabling epilepsy before her untimely and far to early passing. The Foundation has rigorously maintained Ray’s ethos, of creating and expanding an endowment fund the income returns from which would support progammmes, events and activities for those living with epilepsy. This rings true today more than ever. For Ray’s vision way ahead of its time, the Foundation, are truly gratefull.
Ray Kerr MBE, Foundation Founder.
Legendary All Black Ian ‘Kamo’ Jones and son Noah have become the Epilepsy Foundations inaugural ambassadors. The 79 test veteran is a very proud kiwi and speaks with great pride of reaching his full potential and achieving his life’s dream. Epilepsy changes life’s journey for those who contract the condition, often meaning dreams and aspirations are unexpectedly shattered. Recently, Ian’s son Noah contracted epilepsy. Noah has been extremely courageous not allowing epilepsy to define his life by informing all around him of his condition. Noah is delighted to be the face of youth epilepsy advocating awareness for young people with epilepsy.
Ian Donald Jones MNZM (born 17 April 1967 in Whangarei) is a former New Zealand rugby union player. He played 79 tests for the All Blacks and is the most capped lock and formed one of the most famous lock pairings in international rugby, often partnered with Robin Brooke in the All Blacks from 1992 to 1998. What Jones lacked in size he more than made up for in skill, Jones was picked over physically intimidating locks such as Mark Cooksley who was the tallest All Black ever. Jones made his All Black debut Saturday, 16 June 1990 v Scotland at Dunedin. At the time he was 23 years, 60 days old.
Jones had an impressive start with a try on debut. Coincidentally six years later Jones played his 50th test, again at Carisbrook and again with Scotland the opponent. He scored at virtually the same exact spot in the stadium as he did six years before. Throughout his impressive career Jones was renowned for his ability in line-outs. Jones is one of the few players to have topped a century (100) matches for the All Blacks.
In the Super 12 Jones made 38 appearances, often as captain, for the Chiefs between 1996 and 1999. Amazingly for a lock he once scored three tries in a match, against the Waratahs in 1996. In 1998 he was handed a lengthy suspension after a stomping incident involving the Hurricanes’ Jason O’Halloran.
Jones started his career with Northland in 1988 as a string bean 20 year old lock who, was tipped for big things back then. He picked up the nickname “Kamo” after his home town just north of Whangarei in New Zealand’s Northland province.
In total, Jones played 105 matches for the All Blacks including 79 tests. Jones was named captain for one match. Jones scored a total of 14 tries in All Blacks matches with nine of those in test matches.
In the New Year Honours 2010, Jones was appointed Member of the New Zealand Order of Merit, for services to rugby.
The Foundation is delighted to have acclaimed New Zealand artist Reuben Paterson on board as its Art ambassador. Art has great therapeutic value, this the Foundation experienced when Reuben gave his first art class at the Auckland Art Gallery. Ambassadors and support of the caliber Reuben can offer brings amazing purpose and expression to the lives of those living with epilepsy. Check out Reuben’s beautiful and vibrant work at www.reubenpaterson.com
Reuben Paterson is a dynamic young artist known for his creations in glitter and diamond dust. The influence of Paterson’s Maori heritage (Ngati Rangitihi) is strong in his earlier works, which focused on kowhaiwhai motifs. Drawing from both his Maori and Scottish ancestry Paterson also combines traditional pattern and design with non-traditional media, reinvigorating and extending Maori expression. Paterson incorporates formal painting properties of sharp line and ornate detail with specially commissioned glitter colours to elicit curiosity and joy. His use of traditional motif produces works that link to memories of our recent and ancient pasts; memories that are visceral, tangible and intangible. More recently Paterson has extended his range subjects to include animals and bird life.
Receiving a postgraduate Degree in Fine Arts from Auckland University in 1997, Paterson went on to receive New Zealand’s prestigious Moet et Chandon Award to Avize, France as its youngest recipient. Returning to New Zealand Reuben completed a Post Graduate Diploma in Primary School Teaching in 2001. He exhibits nationally and internationally, including shows in the Prague Biennial and Centro de Arte Caja De Burgos, Spain, The Cambridge Museum, England and the Institute of Modern Art, Brisbane, Australia. Paterson has also under taken a major commission for the 6th Asia Pacific Triennial at the Gallery of Modern Art, Brisbane and for the Auckland Art Gallery’s education centre.
Gary, lives with severe epilepsy, he wears a helmet to insure a minimum of harm when one of his many daily seizures occur. Under the watchful eye of high performance and rehabilitation expert, Justin Stewart, Gary smiled, grinned and grimaced his way through a tough treadmill workout. Gary was put through his paces at a number of fitness stations in the gym. His face said it all as he strode from station to station, smiling like a Cheshire cat. The experience of being in a gym environment was a first for the whole group. Many thanks go to Justin, Maria and Robin for the fantastic understanding of the group. All those attending the inaugural epilepsy fitness program had an absolute ball…please see Justin’s report below.
REPORT: Epilepsy Foundation Neuro-fit group
The Epilepsy group started on the 6 of March 2013 at 10 am. The benefits of the group exercise program were abundantly clear. The smiles that lit up the room were immense. A structured exercise routine was set up and the guys and girls got straight into it with Maria, Robin and Justin guiding the process.
A 10 minute warm up was followed by some weight training. Machine based exercises were the obvious choice due to the built in safety features as opposed to free weights. The weights routine took about 40 minutes. The weights routine was then follow by some cardiovascular work on the bicycle for 15- 20 minutes. The session was concluded with a stretch session and a time to reflect and chew the fat. We all seemed pretty good at this.
The social aspect was emphasized and the environment was inviting and positive. The benefits of exercises for those with Epilepsy are no different to those apparently healthy individuals. The benefits include an improved mood, reduced heart rate, reduced body weight and a lower overall health risk.
Seize Life Fundraising Dinner
The Epilepsy Foundations fund raising program kicks off with SEIZE LIFE Thursday May 30 at SkyCity in Hamilton. SEIZE LIFE reflects upon achieving excellence and fulfilling potentials. In contrast, Eric Tiedemann, having a glittering academic career ahead of her, will explain how epilepsy stripped her of her dreams due to contacting epilepsy. With an amazing line up of ultra-successful guests, Erica and $100,000 of diamonds on display for auction we envisage a successful event. If you would like to attend, or want further information about, SEIZE LIFE, please contact Murray via email@example.com or telephone 09 573 5772. Tables are available at $1000 for ten guests.
- Epilepsy Foundation AGM in Hamilton
- Epilepsy Foundation 25 year Celebration in Hamilton
- Peleton Fundraiser Cycle event with the Hamilton Business Association and Les Mills
- Epilepsy Foundation North Island Camp
Tuesday March 26 is world epilepsy awareness day. Please wear purple clothing in recognition of one of the world’s most common neurological conditions epilepsy. If you would like to donate, and support tens of thousands of kiwis living with epilepsy, please go to our website at www.epilepsyfoundation.org.nz and press the purple donate portal on the homepage. All donations above $30.00 will receive a gift.
Our events and activities bring much pleasure to those who take part. The supporting of people living with epilepsy is essential. If you feel you might like to support an event, activity or program you can donate via our donate button above or on the Foundation homepage. For Further information on ways you may wish to leave a legacy for those living with epilepsy please email.
or call 09 573 5772.
In line with maintaining our image as a professional organization, The Foundation, are delighted to announce a partnership with Method Studio, experts in the field of Digital Marketing and Social Media. Method will edit, format and distribute the newsletter on behalf of the Foundation. Check out Methods amazing work at www.methodstudios.co.nz